Still trying to get better. After my pursuit I was diagnosed with vocal cord dysfunction. Cat scan showed bilateral PE. I would love any feedback on chest sensations if anyone else has experienced them. Like you I do have the chest pain mainly on my left side. Thank you for writing this. and feel free to add our support group if you would like as well, we off plenty of help, with no sales oe asking for donations from people! I stuck out my arm and immediately went back to sleep. I'd had a pretty bad bike crash on the same leg as the clot. It got worse though a few days ago. Thank you for this page. here is the link https://www.facebook.com/groups/apsca/. Info helpful. I've gone too far and my recovery from these setbacks ran from 4 days to 10. I only have heterozygous Factor V Leiden. The physician in the emergency room told my with I was lucky to be alive. My heart rate is under 100bpm. None were able to describe what you have here and what I've actually experienced. I found another. I'm fearing the worst, and seem to think I either have high WBC that is "my normal" or cancer...I deal with the stress by making jokes, but I am nervous and don't know how much to force this issue with my physician. I drink more water, take 15 minute rest breaks when driving or traveling, and leave my desk for breaks at work. July was my hospital admission. I'm just not bouncing back. BW. Always speak to your doctor before acting and in cases of emergency seek I made two trips to the ER after my clots. com Or website www. Page after page contained symptoms of a PE, the dangers of embolisms, and the treatments that were available. Thank you so much for your insight! i searched for alternative treatment before i was introduced to Health herbal clinic by a friend here in the United states she told me they have successful herbal treatment to Emphysema and other lungs diseases. I was losing my voice, the quality changed and had to have a motility study and speech therapy. SO. My Mom has experienced 7 blood clots - 3 of those PE's which required hospitalization. The treatment is the same as he is on now, just didn't need anything added to what he already has. First had PE 6 years ago - was in hospital for a week but recovered without a problem. Both chronic and accute. I am glad you had your doc check it out thought! And mine hasn't been a bed of roses. It looks really painful, health is underrated by most people, I hope I can quit smoking, now , seeing what a patient of this decease can go through is no joke, why would I poison myself?.. Placed on Zarelto. One week after undergoing laparotomic sigmoidectomy for diverticulitis, our patient started to experience … Some people have a harder time with symptoms than I have. I did and unfortunately found the wrong pulmonary doc but after crying, he at least listened and ordered a VQ scan (lung perfusion scan). All I remember is, on the fateful day, feeling a bit dizzy - then I began struggling for air. You need to know that they are not a return or exacerbation of clots in the lungs. I see that people are on Coumadin. Oxygen was low, blood pressure was up, heart rate was up and my skin was pale and cold. I am currently taking xarelto and not quite sure of my next steps. I had a large saddle embolism in Jan 2015 and am a similar age to yourself. I will be on coumadin for life. Lying still required a lot of painkillers. (no insurance due to residency and hubby is retired.) No matter how much i breathed I felt dizzier and dizzier. I'm on Coumadin for life. i am 66 a young 66 who was always on the go but about a year before i got mine 12/16/2016 i just felt something wasn't with me....i kept mentioning it to doctor who basically ignored me, but i know my body and it wasnt right. Most of us don't have stereotypical symptoms and the symptoms we do have overlap with other diseases. "Sparks" are like small electrical jolts that are sporadic and move around. At first a 3/4 mile walks exhausted me. That evening I was placed in the step down unit. Its realy helpful. You may feel more tired, more often and be more sick, more often then before your PE. What I have found is how taxing this is mentally. It has been 3 months now , can anybody tell me if they have trouble laying down in bed as I get pain and lots of lung noise so tend to sleep more elevated also hurts more to lay on my right hand side. I was scared but went home. Recovery can be strenuous. Another trip to A&E the same day and they put Pete on the blood thinning injection and booked him in for an ultrasound a week later on his leg looking for a DVT. The blood clot was confirmed and it was also confirmed that he has no blood clotting disorder, they believe the clots he has were caused by trauma. I get tired quickly after doing light cleaning. Impressive work. Pete did have an accident when he was 14 when he fell down the side of a train which would explain this. A PE can become life-threatening. Do I need an echo-cardiograph to see if my heart ejection factor etc has gotten worse? Thank you for your article. I had a bilateral saddle PE the week before thanksgiving. I have been very lucky as my only symptoms were shortness of breath a few months ago and most recently a swollen leg. He has been hospitalized with pneumonia every year. I lay there thinking about what to do and next thing I knew it was morning. But right now I am just very grateful that everything has gone so smoothly. I went to the ER on Easter due to shortness of breath. Hi Wendy, my case seems similar to yours. I recently found myself in the hospital for severe obdominal pain (just below sternum and left an inch). Were the aneurism and warfarin incidents two separate things? The most important long‐term complication of PE is chronic pulmonary hypertension (which may manifest as fatigue, limited exercise tolerance or shortness of breath), which was shown to affect 3.8% of PE patients within 2 years following the initial event in … Whether or not pushing myself physically did any good I'll never know. My (worthless) advice is don't get too wrapped around the axle about various numbers unless they change or hit some obvious bad zone. Lensa Welch has been writing on HubPages for over nine years. If any of them are severe, or you are not sure whether they resemble a clot or recovery, you should go to the emergency room and tell them that you had a recent PE. Also , I've had a revision hip opp a year ago  and waiting for another on my right hip. I'm struggling with recovery as I thought I'd get some blood thinners and oxygen for a while. The line between gasping and hard breathing was ever changing. These tests also allow your doctor to monitor the health of your blood vessels and the way blood flows through them. This was on Friday July 25th, just a fortnight ago. I was admitted to the hospital this past Wednesday after going to the ER with shortness of breath and pain in my calf. I remember being woken around 4 am by a lab guy looking for blood. How another PE may kill me. Our clinical information is certified to meet NHS England's Information Standard.Read more. Until this active and healthy 72 yr old with very large family no heart blood problems. weebly. I'm awaiting tests as the PE was only 4 weeks ago. and blood clot following an ankle surgery. They did not give me a clot buster or go in and get it. I just want this to magically disappear. All pulmonary embolism patients should expect to have additional tests. Also, if you aren't feeling well work with your doctor to get better. People don't understand how difficult recovery is this time. They gave Pete an MRI of the effected area and confirmed it had not got any worse and that due to the extent of his clot, he would need to go onto Rivaoxoban as you do not have to keep this drug within a theraputic range. Im having chest pains dizziness and tried with headaches. The hematologist ran tests, the one that came back positive was Lupus anticoagulant, but the Dr. said they will rerun the tests after the 6 months on my zeralto, as there is sometimes a false positive while on the medications. They then explained that they had found a massive blood clot in his inferior vena cava vein which extended into both legs in the illiac veins - right and left legs (this was foreign to us but knew it sounded bad). It has been a tough struggle though, and I have learned to resign myself to the fate that I will never have the energy or the drive I hade prior to my PE. it's the most comprehensive one I've read and totally appreciate it! I found recovery to be a very slow process....Now, nearly 18 months on and I'm pretty much back to normal but still get out of breath sometimes and get little niggly chest pains. For the first few weeks back to work if I did a lot of moving merchandise my chest would hurt as well as my shoulders. The new doctor we saw referred him back to the hospital as an out patient in ACU the next day. Pain, shortness of breath forcing me to cough, fatigue. I'm in sever pain with arteritis  and taking a codine based pain killer twice daily. I don't have much. Diagnosed 2+ weeks ago with massive bilateral PEs. The dehydration from the ordeal was pretty bad... about 6%. Today I might have a pressure or a spark when I start exercising or during a good workout. It is looking like that was a good estimate for my body. I am wondering what other studies have found. The patient will be started immediately on blood thinning medication. That was extremely helpful, just knowing that what I am experiencing is normal symptoms to PE so not so alarming - thank you for taking the time to help others with PE. ... another dangerous complication that can cause fatigue and shortness of … This went on for over a month and again a further 2 doctors visits sent him away with pneumonia. I'm very tired all the time but can't tell if its from the medication or the PE as I still have multible clots on my lungs and my legs are barly getting my around even on crutches. This may mean an exercise plan, gradual return to work, or medications to help specific symptoms. He then started using a cane. Now I am fighting hard to not sink into depression, although I can feel it knocking on the door at times. My blood pressure was fine, my oxygen saturation was fine, the ECG for my heart was fine - I just had lungs full of clots. A basic echo is fairly standard not sure about the more detailed one. You did the right thing going back and they did the right thing diagnosing you. No one has been concerned but the pain is always there and it is starting to affect my mood. I have a cough off and on and shortness of breath. I was discharged a few hours later (and walked home slowly because I only live a block from the hospital) once I had been shown how to give myself the heparin injections and familiarise myself with the different colours of Mareva (warfarin) tablets. Pulmonary Embolism Chronic fatigue Follow Posted 4 years ago, 20 users are following. I thought I was having a heart attack. After I was off the medication for 2 weeks the blood test was done again and came out negative. I have lost everything. I’ve been to the er several times because of chest pains and they ran lots of blood tests and did x rays, I was told everything was normal. Obviously very weak due to time spent in hospital for colon removal and then PE. 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